For years, Bast suffered from numerous, painful symptoms. She experienced hair loss, tooth decay, extreme fatigue, chronic migraines, canker sores, diarrhea, bloating, gastrointestinal pain, and tingling sensations in her fingers and toes. After one stillborn child and three midterm miscarriages, the 5-foot 9-inch Bast weighed just 105 pounds and kept getting sicker. Her second daughter was born seven weeks premature and weighed two pounds. In the decade since her symptoms had begun, Bast visited 22 doctors, none of whom correctly diagnosed her.
Finally, a veterinarian suspected that Bast’s symptoms were food-related. A simple blood test confirmed the diagnosis of celiac disease. An estimated 3 million Americans of all races, ages, and genders suffer from celiac disease and a staggering 95% of celiacs (people with celiac disease) are undiagnosed or misdiagnosed. A pharmaceutical cure for the disease has not been found and the only treatment is a lifelong gluten-free diet.
In 2003, Bast founded the National Foundation for Celiac Awareness (NFCA) with a dual mission: to increase awareness of celiac disease in order to make early diagnosis standard, and to raise funds to support medical research and education. While the NFCA is not the only organization to support celiacs, Bast’s initiatives are the first to actively work to diagnose them. Since the establishment of the NFCA, the rate of diagnosis has dropped significantly from eleven to six years.
To increase early diagnosis, Bast joined forces with area hospitals to create celiac centers which treat patients throughout the region. With a grant from the National Institutes of Health in 2004, Bast organized an international medical advisory board to help physicians diagnose celiac disease more quickly. She produced free online resources about celiac disease, through which primary-care physicians can earn continuing medical-education credits by studying.